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Page Author Biography
As a 29 year-old with cerebral palsy, I have had my share of struggles with
dating relationships and sexuality.Growing up sheltered and attending a small alternative middle and high school where hardly
anyone dated, I did not feel particularly discouraged about my "singlehood" until I reached college. Although I studied at
a women's college, it seemed as though everyone around me was spending their weekends partying and "hooking up" at nearby
co-ed or all male schools. Distrustful of the fraternity scene and too timid to search for alternative opportunities, I spent
my weekends studying and socializing with the students who stayed on campus.I made some wonderful friends at college and do
not regret my choice to nurture my relationships with women, yet I wish that I had been confident enough to explore other
avenues for meeting men.
I haphazardly stumbled into my first romantic relationship at the age of 21, the summer before
my senior year of college. As a budding disability rights activist, I met Toby at a national leadership conference for youth
with disabilities. We quickly found that our backgrounds had a lot in common, that we understood each other's struggles, and
that we had similar aspirations for the future. Although our relationship was long distance, we fell in love over that summer
and spent most of the next two years together. It was a wonderful first relationship for me, and even though I was very inexperienced
in terms of physical intimacy and sexuality, let's just say I was a pretty quick study
I learned that despite my disability,
I was still a sexual being and that there were men out there who would see that and who would value both my inner and outer
beauty. However, as we got to know each other better, we gradually discovered that we were not as similar as we first thought,
and that our personality differences, combined with our individual struggles to begin our careers and find our unique identities,
would eventually drive us apart. Breaking up with him was one of the hardest things I've ever experienced and part of me will
always love him, but I think I knew from the beginning that he was not "the one" for me.
While my relationship with
Toby taught me a lot about myself, my sexuality, and the kind of long term partner I hoped to find, I wish it had given me
more confidence that there would be any other potential partners. I once again found myself full of doubts and insecurities
about whether there would ever be anybody else, and I began to wonder whether my first love was just an anomaly, rather than
concrete evidence that I could be attractive and desirable to a potential romantic partner. Despite the fact that over the
next several years I would develop a strong network of friends and would be generally happy with my life as a graduate student,
I always felt that some significant part of my life was missing but was still (save for single dates and short-lived couplings
here and there) too insecure and anxious to really put myself out there into situations conducive to meeting someone.
They
say that love doesn't just fall into your lap, and that you've got to go searching for it. While I do believe that people
with and without disabilities need to be proactive in their quest for romance, I "fell" into my second serious relationship
in another unexpected place: my academic department.
Ryan and I had known each other as fellow PhD students for over
a year before we began dating; I liked him from the moment I met him, and was secretly crushed when I found out that he was
in a serious relationship with someone else. By the time he and his ex-girlfriend broke up, we'd already become great friends
and I felt really comfortable around him; we'd even traveled to England together to attend a conference.
I remember
trying hard to be supportive of him after his break-up, all the while thinking that I needed to play my cards very carefully.
I must have drawn a good hand because it was less than two months later that we began "officially" dating, and next month
we will celebrate our one-year anniversary.
In some ways, I consider this to be my first "real" relationship, as Ryan
and I see each other almost daily and although we truly love one another, we often have disagreements and trouble communicating
about our everyday needs, including our needs for closeness and our needs for independence. Despite these conflicts and the
fact that we have pretty distinct personality characteristics, there remains a certain "spark" that keeps us connected. Recently,
after we'd been arguing, I was trying to describe to Ryan this "spark" that I felt so strongly. He immediately grabbed my
hand, kissed it, and said "Kelly, that's called love.
The two most important lessons I have learned about romantic
relationships are (a) that they can be challenging to navigate - joyous and painful, sometimes at the same time; and (b) that
it's almost impossible to have a healthy relationship if you do not feel confident in whom you are as an individual and in
being on your own. It has always seemed like an oxymoron: the stability and goodness of our romantic relationships seem to
be critical for developing that confidence and for validating who we are, yet it's exceedingly difficult to have a healthy
relationship to start with if we are not already confident as women, even as women with disabilities.
I love Ryan
all the more because I love myself; I am with him because I want to be, not because I need a man to be happy or whole. A friend
of mine who met her boyfriend and quickly married after being single for many years recently described her love by utilizing
the old cliché, "He completes me." Although I am glad she is happy and I hope that she will continue to be happy, I couldn't
help but flinch when I heard her statement. For Ryan does not complete me; I am complete on my own, as is he. Instead, Ryan
and I complement one another; we as individuals come together to form a partnership, and we value one another as individuals
as much as we value our relationship as a couple.
So, please do not, as women with disabilities, or just as women,
feel like you have to settle.Please do not feel like you are worthless without a partner. Please do not sell yourself short
or give up because you have a disability.If you choose to look for a partner, please put yourself out there in situations
where you shine, even if those situations provoke anxiety and even if you initially face rejection. Please recognize that
not only do you have value, but that your disability (as well as your womanhood) is an integral part of that value. Please
do not be afraid to explore and enjoy your opportunities for romance and for sexual expression. Finally, please share your
struggles and successes with others who create and visit this site.
Together, we can form an active and vibrant community
of individuals who self-identify as female, disabled, and proud!
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Resources about disabled dating, romance, and sexuality Books
- Kroll, K. & Klein, E. L. (1995). Enabling Romance: A Guide to Love, Sex and Relationships for People with Disabilities
(and the People who Care About Them). Bethesda: Woodbine.
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Kaufman, M., Silverberg, C., & Odette, F. (2003). The Ultimate Guide to Sex and Disability. San Francisco: Cleis.
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Shakespeare, T., Gillespie-Sells, K. & Davies, D. (1996). The Sexual Politics of Disability. Untold Desires.New York: Cassell.
Articles
- Body Beautiful/Body Perfect: Challenging the Status Quo
- Where Do Women with Disabilities Fit In? Retrieved 17 Oct 2007 from http://www.geocities.com/HotSprings/7319/sex.htm
- Disability Sex Dating and Adult Chat Retrieved 17 Oct 2007 from http://www.disabled-world.com/artman/publish/disability-sex.shtml
- Nosek, M. A., Howland, C., Rintala, D. H., Young, M. E., & Chanpong, G. F. (2001). National Study of Women
with Physical Disabilities: Final Report. Sexuality and Disability, 19, 1, 5-39. Hassouneh-Phillips, D. & McNeff, E. (2005).
"I Thought I was less worthy": Low sexual and body esteem and increased vulnerability to intimate partner abuse in women with
physical disabilities. Sexuality & Disability, 23, 4, 227-240.
- Vansteenwegen, A. Jans, & Revell, T. (2003). Sexual Experience of Women with a Physical Disability: A Comparative Study.
Sexuality & Disability, 21, 4, 283-290.
- Taleporos, G. & McCabe, M. P. (2001). The Impact of Physical Disability on Body Esteem. Sexuality & Disability, 19,
4, 293-308.
- Taleporos, G. & McCabe, M. P. (2001). Physical Disability and Sexual Esteem. Sexuality & Disability, 19, 2, 131-148.
Websites
for further research
- http://www.siecus.org/pubs/biblio/bibs0009.html - Extensive bibliography and resource site related to disability and sexuality.
- http://www.sexsupport.org/cpresources.html- Sexuality And Disability: Education, Advocacy & Support: a part of Information on Disability for Empowerment, Advocacy &
Support (IDEAS). Every person experiences sexuality differently and needs different information. Most of what is available
regarding sexuality and disability on websites is not easily accessed by those whose disabilities impair their ability to
read. This site is designed to meet the needs of these people and the people who care about them - personally or professionally.
- http://www.sexualhealth.com/channel/view/disability-illness -The Sexual Health Network is dedicated to providing easy access to sexuality information, education, support, and other
resources. It contains an extensive section on disability and illness.
Disabled Dating Websites
- http://www.lovebyrd.com - Lovebryd's mission is to provide a disabled dating and social networking service to individuals living with a condition
that makes it difficult to meet and connect with other people. Whether you use the term disabled, differently abled, challenged,
handicapped or you prefer not to classify your condition, Lovebyrd is right for you if you are disabled (or non-disabled)
and looking to meet fun, friendly disabled singles for friendship, dating, online chat, or even long-term relationships leading
to marriage. Lovebryd aims to provide a safe Internet disabled dating community and friendship network for single disabled
men and women around the world.
- http://www.disabled-world.com/disabled-dating/index.php. Disabled Dating World is a totally free online dating service for the elderly and persons with disabilities, their families
and friends and able bodied members who would like to meet compatible people who happen to have a disability.Our Disabled
Dating website is an international service for persons with disabilities from all around the world and includes chat rooms,
your own mailbox, compatibility matchmaking service, instant messaging (IM) and many more exciting features
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http://www.dateable.org A dating service with heart that's why we are here. DateAble is a unique non-profit social organization for people with and
without disabilities who seek new friends and relationships. DateAble provides assistance with enhancing members social skills
and developing life goals via telephone on an appointment basis.
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